Wednesday, June 20, 2007

We're starting to get somewhere

Emeric had an appointment with a pediatric neurologist yesterday. She does believe that Emeric is having seizures but wants to schedule a video EEG where he will be videotaped as well as being hooked up to watch his brain waves. That will last 24 hours and he'll be admitted to the hospital for 2 days. She said IF that comes back normal and shows he is not having seizures she wants a sleep study done to rule out narcolepsy! She did say she's never seen narcolepsy in a baby this young and is pretty sure it isn't that.

I talked with her about Emeric's developmental delays as well as his autistic like behavior. I told her our family doctor had told me that Emeric has autism. She said she does see a lot of characteristics of autism but that she wants to rule out seizures first. She said seizures can really mess with the brain and could be responsible for his delays.

There's a neurology clinic in Minneapolis that she's going to try to get us into this week for Emeric's EEG but if they can't fit him in then it will be next Wednesday-Thursday in Fargo.

I'm just praying for some answers. It's hard not knowing what is going on. I'm not sure which diagnosis seems "better" right now. Autism or Epilepsy? I guess we'll wait to see the results of the upcoming tests before we start worrying too much. Ok, well I've already passed the point of worrying too much but I'll try! ;)

Please pray for Emeric and for the specialists working with him that they'll figure out what's going on and how to treat it!

Early Intervention is also coming out once a week to work with him for 30 minutes and so far it's been ok but he really doesn't tolerate much more than 10-15 minutes of interaction and even then he doesn't really interact so it's a struggle for the women to get him to actually do what they want him to do. But, it's still interaction and that's what he needs. I'm planning on talking to Carmen(she's in charge of which therapists come out and when) and seeing if it's possible to give him more services. 2 hours a month is just not enough.

Well, this is getting long. I better get going! The girls are hungry! :)


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