I thought about taking some pictures of my chipmunk cheeks that I acquired after getting my wisdom teeth out but figured these would be more enjoyable!
Sunday night bon fire
This is at the beginning of the marshmallow roasting.
We met at a waterpark with my sisters kids and my half sisters Jessica, Miranda and her daughter Elli. The kids had a lot of fun!
I shared this on Facebook but I thought I'd share it here too as well. Please take the 8 minutes to watch this video. I "know" some of these kids through meeting their moms on an online support group for parents of kids with Mitochondrial Disease. Is it a sad video? Yes. But it's the reality of the disease and unless people understand what it is they will not support the research.
I hate this disease. It's what causes Emeric to lie on the couch all day long some days. It's what keeps him on seizure medications, makes him unable or unwilling to eat enough, gives him 10 words at nearly 4 years old, and makes him so hot that he can't even enjoy a hot day outside!
Between being busy with all of Emeric's stuff, not having anything interesting to say, and a few other reasons I haven't been blogging lately. My "Feed the Freezer" event hasn't happened yet and will likely continue to be put off for a bit. I did just make 7 lbs of sloppy joe meat so I guess I'm not totally off board. :)
As for now we've been enjoying nice weather, Easter, and a break from school!
