Day 3

I am still sick. I can semi-function if I take lots of Ibuprofen every 4 hours. Yes, I know it's horrible for my stomach but there are worse things, like being really sick and having 3 sick kids to take care of. So, you do what you have to do! I got up early and took some Ibuprofen again hoping that by the time the kids woke up it would kick in. Kaydence is already up and still running a fever. So far Emeric hasn't gotten the brunt of this. I can't imagine that he won't though. Jake is feeling better but he never gets sick so for him to it must be very contagious!

Emeric had a neurology appt. this morning but we're going to have to cancel it. Which stinks because she can't see him for at least another month but I can't drag everyone up to Fargo in the cold when they're sick.

I'm hoping the nurse will call today with Emeric's biopsy appt. It's usually 6-8 weeks so I'm expecting to be heading back to Cleveland sometime in March. If you didn't read Emeric's caringbridge site his DNA sequencing that we had done for the Creatine Transporter Defect came back normal so we're back to doing the spinal tap and muscle biopsy. Dr. Parikh said both neurotransmitter disease and mitochondrial disease are still on the table. Either one of the two or both is possible.

Please keep Emeric in your prayers that he doesn't get this flu!

Well, now we're all sick. Kylie is still sick, Kaydence and I got sick yesterday. I haven't felt this sick in a long time. I checked my temp. for the fun of it and it was 102.7!! This obviously isn't a 24 hr. flu but I hope it isn't a week long one either! Emeric is the best one so far. He's ran a low grade temp and has a cough but otherwise he's been good so I'm praying it stays that way! Jake has to go back to work tomorrow(he took the last 2 days off) so I hope I'm also better!

Sick kid...

And for once it isn't Emeric! It's Kylie! Kylie is NEVER sick. Everyone else in the family will get sick and she won't. In fact, I think the last time she was really sick was at least a year and a half ago or longer and she ended up in the hospital because she was so dehydrated. She's just lying on the cough saying her stomach hurts and she's running a fever. Hopefully it passes quickly and the other kids don't pick it up! Or me!

Took some pictures of Emeric yesterday because he hasn't had his pictures taken professionally since he was 4 months old. I thought maybe I could get a good one and get it framed. Here are a few I liked(and the girls being goofy):

Emeric in his lovely EEG wear

My Montage 2/15/08

Video of the kids

My Montage 2/13/08

I need to find a doctor

I really need to get some allergy testing done. I have congestion, itchy and watery eyes, stomach cramps, gas, bloating, etc EVERY DAY. I know I'm sensitive to dairy but I suspect probably corn or wheat too and I'm sure a million other things.

I've also got arthritis in my knee that they found back when they did my knee surgery and I've wrist pain for a few years that feels all to similar to the knee pain so I suppose that's arthritis too! Ugh.

Back a few months ago I was tested for B12 and mine came back pretty low. I'm sure that's part of all of my "issues". Most of the things that bother me aren't all that severe, just annoying. Like my kidney... It's STILL hurting from my pregnancy EIGHTEEN MONTHS AGO. They've done an ultrasound and it came back normal so the doctor says there's nothing wrong. Well, there obviously is or it wouldn't still be hurting!

Also a while back I had my urine checked for a possible UTI and I was spilling sugar in my urine.

There's a lot more going on and I'm really thinking of going to see a naturopath just to get an idea of what, if anything can help some of these things. Last night my knee hurt so bad I couldn't hardly bend my leg. Now this morning it feels fine. It's amazing how the weather affects it. I know people with arthritis say that and it sounded ridiculous to me until I realized it was true.

Of course my problem is I can't afford to get any of this stuff done and have spend enough time at the doctor's office in the last year so I probably won't actually go but it's something I keep pondering...

Jake keeps telling me he's waiting for me to be wheelchair bound and hunched over when I'm 40 because of my ailments! LOL

Home again, home again jiggity jig

We're home from Mayo. Emeric was admitted Tuesday morning for EEG monitoring. They caught a couple seizures and said his brain waves are slower than normal but other than that no changes really. They increased one of the new meds he just started hoping to get him totally seizure free. He's glad to be home and so am I! Kylie and Jake's mom came with and Kaydence stayed home with Jake. Both of the girls enjoyed their time away. I was nervous because they've never been apart before but they did great. Kaydence was sick most of the time we were gone with a high fever and a cough but so far no one else has caught it!

Jake will start hauling seed potatoes for his brother next Monday for two months and will be gone quite a bit with that. He's hoping he'll be able to come home most nights but trucking never goes the way you've planned it!!

It's supposed to be really cold tomorrow so we're not going to be doing much. Maybe I can get some much needed cleaning done!