Happy New Year!

We don't have much planned today. I wanted to run and get a couple ingredients for some appetizers I was going to make tonight but it's so cold I hate to drag the kids out. So we'll see. We're not doing much. We're having some friends over and eating food but that's about it. I got some New Year party hats for the girls which they love. I'll take some pictures later! :)

The kids are all seemingly healthy for now. They still have the cough but it's not bad at all. Emeric has been really good today, much less crabby, so I'm assuming he's feeling better too. Plus he's been a little ham all day! He has this goofy laugh that is so funny! I should get a video of it sometime.

Have a great day!

Some Christmas pictures!

Ready for church

Christmas Pajamas!
Stockings
Emeric's new truck

Home from the hospital

You can read Emeric's caringbridge site if you want to know why we were in the hospital! :)

Kaydence and Emeric are both still sick but Emeric seems to be doing better. Kaydence has been lying around for the last few days. Hopefully she's over it soon.

I haven't slept since Tuesday night so I'm tired and hopefully the kids will sleep tonight! I'm off to put a movie in!

Merry Christmas!

The kids slept in today which was nice but once they were up they were ready to open their gifts right away! Kylie got a V-tech game system that plugs into the computer and she has been playing it ever since. She also got a game and a plate and bowl set. Kaydence got a doll, a plate and bowl set, a game and some Dora and Diego sheets. Emeric got a wagon, a tonka truck and an Ugly Doll. I got Jake a new drill and some new clothes.

Emeric has been sick since Sunday so he didn't enjoy anything much and he's been so tired he went back to bed within the hour. Since Saturday he's been having a lot of seizures. It stinks that we couldn't catch them when he had the VEEG so we'd know exactly what was going on. Saturday-Monday he had at least 20+ within a few hours. I can't wait to start the supplements with him and see if they help. I sure hope so because he's not been himself at all for a while.

We're going to Jake's parents house today for Christmas so I need to go pick up a lot of wrapping paper first! Have a Merry Christmas!

Early Christmas present

I said the last post was my last post for the day but then I got my Christmas present early so I had to show pictures.

Jake made me this entertainment center because I've been begging for one since Emeric is ALWAYS getting up by the tv and shutting it off! He even used the right kind of handles so I can use the childproof locks I have! :)

Our Occupational Therapist had scored Emeric a while back for sensory processing difficulties and I got the report today. They score them in different areas and they their performance among their peers.

In visual processing he scored typical. In tactile (touch) he scored probable difference. In oral sensory processing he scored probable difference. In auditory(hearing) he scored definite difference. In Vestibular(movement) processing he scored definite difference. She said Emeric demonstrates sensory processing difficulties. And that he has low registration which indicates poor modulation. She said it's like being unable to tune to a radio station. He demonstrates sensory sensitivity and sensory avoiding. She writes, "Children with this combination may not notice stimuli when they need to but once they do notice their nervous systems are intolerant to the input. His behavior may be inconsistent. Avoiding behaviors may cause the child to be overcome by sensory input and engage in very disruptive behaviors appearing stubborn or controlling. He may be viewed as fussy or may require a great deal of structure. He may demonstrate more variability in behavior which makes it hard to plan or anticipate what will work."

Man, she described him well! LOL The fussy, stubborn part is right on!

She also said that touch, oral sensory processing, auditory and movement are also areas of need. So basically they're going to be working on everything with him. The bad part is that this OT that did this assessment won't be our OT anymore and instead it will be another OT who doesn't know much about sensory processing difficulties. There is a possibility thought that if we do private OT instead of state funded that we could get the old OT back, which would be nice.

Anyway, that's my last update for the day!

Quick trip to the hospital

The last few days have been pretty busy around here! On Wednesday Emeric was acting strange and we weren't sure if he was having seizures or what he was doing so the neurologist wanted to see him Thursday morning. We drove up to Fargo to see her and she decided to raise his medication and if that didn't work she wanted to admit him after the new year for more testing. So we came home. As soon as I got home there was a message from her saying she wanted us to come back and she was going to admit him for a Video EEG. (VEEG) So, I flew around the house trying to get some stuff packed, brought the girls back to Jake's mom and dads house and drove up to Fargo AGAIN.

He was admitted Thursday night and hooked up to the VEEG. Hooking him up took at least an hour and was pure torture for him. He had to be held down while they glue the electrodes on and they use an air gun to dry the glue which is loud and scared him. Then they go back and glue on some pieces of gauze and then they go back and scratch all the electrodes which has to hurt and then they fill them all with gel. He was so tired afterwards and the neurologist wanted him up until 10:00pm.

The rooms are tiny and the cords are only a few feet long so he couldn't move around much which he didn't enjoy, but the neurologist let us leave early on Friday which was nice! She called our cell phone to give us the results and she said it was abnormal. She's going to maximize the medication he's on now and then if that doesn't help she's going to start him on another medication. So, we're hoping the medicine he's on now helps because starting another one is a huge hassle for everyone involved!

Here are some pictures of him in the hospital...