Epilepsy 101

I'm looking to put together a booklet on Epilepsy so I thought it might be informative if people had questions about Epilepsy that I could answer. So, feel free to ask anything and everything you want to know. I'm not an expert by any means but I'll do my best. No question is off limits, you can ask something relating generally to Epilepsy or specifically to Emeric if you want.

I plan on doing a separate post to answer the questions and include some of my own information! I'll also use the questions and answers for my booklet. I think I've done a post on Epilepsy before but as our Stroll for Epilepsy approaches in the coming months I'd like to focus on it a bit more!

Fire away!

Camping

Jake's extra-long long box worked nicely to pull our camper when I suddenly had a longing to go camping this weekend.

We headed to Itasca State Park where it was just a little bit cold. Luckily I was prepared with hearty lunch of grilled cheese sprayed with Pam instead of butter and BBQ chips. The first sandwich turned out a bit soggy and Jake offered to eat it. I gave it to Kylie and she ate it. The next few were mostly burned and Jake again offered to eat them but I knew if I waited for perfection we might run out of bread. Here he is making the grilled cheese:

Doesn't he look thrilled?

The rest of the day was spent hiking and playing.

(Does anyone else think these two are starting to look like twins? Kylie told Kaydence that she thinks she might have stopped growing.)

Hiking, playing, and falling in the dirt. Alot.

Unless you're on dad's back and then you're safe.

It was beautiful there but in late May there isn't much for blooming flowers so I took what I could get. Isn't that a superb dandelion?

Headwaters of the Mississippi River

Kylie wanted to walk over the rocks at the headwaters. She fell in shortly after which sadly I didn't get a picture of. :)

And a picture of my bifocals, just for you, Erin.

Lurning pay shense

The bifocals are up and running. My spell check apparently isn't. (see title of post)

It's only taken me a mere EIGHT months to figure out how to get 2 of the blood tests done that Emeric's doctor wants done. Between billing and transferring and blah blah blah it's been a pain to try to get it done. I think we've finally figured out how to get it done, where to get it done and most importantly how to get it paid for by insurance. Another trip to Fargo and approximately 6 weeks for results and we're looking at finally having these tests back by July sometime.

This is my life.

Seriously, I feel like my life revolves around hospitals, billing dept's, insurance dept's, blood, urine and therapy.

I shouldn't complain, we've actually had a nice break lately with testing but for the 2 seconds it takes to draw the blood it's another gazillion hours getting it all set up. Genetic testing isn't as effortless as say, getting a glucose level.

Excitingly though I finally broke down and bought my own fax/copier/printer/scanner machine and that will make things a bit easier because I can stop wasting my mother in law's ink and paper using hers all the time.

So, if you wanna fax me and make me feel super important just let me know first. I'm not fancy enough to actually have a different number so there are a few steps involved.

Just wait, a year from now I'll have my own lab set up in the basement. Mwah ha ha.

Kaydence fell asleep on the coffee table.

And yes, those are skullbones tattooed on her hand. LOL

Emeric before he got his hair cut, eating a tube of mascara.

Prone to wander....

I'm getting bifocals.

And this is how I feel about it.




Do you think it's possible bifocals are the "new thing" fashion wise for my generation?

Yeah, I didn't think so either.


Apparently my left eye drifts upward so my brain is working extra hard to keep my eyes focused. My poor brain needs a break from my wandering eye. So, because I need a prism to keep my eye from being disobedient and I need reading glasses the best option is bifocals. I do have 20/20 vision far away which I guess is worth mentioning.



Thankfully for me these bifocals aren't the straight line across but a circle. Yippee!



What's next, a scooter?

Check out this video

This video is of Landon, the little boy I have posted about before who has Mitochondrial Disease. The doctor in the video is Dr. Koenig, our doctor from Houston.

http://www.chron.com/content/chronicle/special/07/templates/listpop.html?mcVideo=22489826001

Stroll For Epilepsy

The Stroll for Epilepsy will be coming up August 13th this year in Fargo again. I'm recruiting team members that are willing to try to raise $100 for the Minnesota Epilepsy Foundation. If you'd be interested in being on our team please let me know right away! You don't have to be able to walk with us in order to be on the team either.

I will also be adding a link to my blog where you can donate if you'd like to or link to others who would like to donate!